Mark Your Calendars July 11, 2012

Mark your calendars!

To all my Greater Houston Area Friends: I’m the invited keynote speaker at the MD Anderson Breast Cancer Support Group “Breast Friends” on Wednesday, July 11, at 7:00 p.m. at St. Luke’s Hospital, The Woodlands (near highway 242 and I-45) in Conference Room 1 which overlooks a beautiful small lake.

Hoping to see all from this area who are dealing with cancer or supporting a friend in her battle. Spread the words to your friends and let’s have an evening of supporting one another. The evening is open to all at no cost to anyone.

Promise laughter and hope there will be some inspiration as well! If you want more info, please leave a comment here and I’ll be happy to respond.

And if you don’t know the area–some FABULOUS restaurants in The Market Street which is very close to the event area. Make an evening of it!

Voting on covers!

 

Bob Probst and I have narrowed our choices of covers for our new book “Notice and Note” to two.  Now we’d love you to weigh in!   Which cover do you like best?  Respond here or on Twitter to @KyleneBeers with Cover 1 (The one with “Notice and Note” on 2 lines) or Cover 2 (The one with “Notice and Note” on 1 line).   All votes due by 9:00 a.m. Thursday, June 14.

So many teachers from across the nation let us into their classrooms or taught the lessons for us as we were developing these strategies that it seemed only natural–and right–to extend the collaboration to this level of the process of moving from idea to book.  Thank you dear teachers for all that you do.

Lifetime Reading and Series Books

Nancy Drew, Bobbsey Twins, Little House on the Prairie, Hardy Boys, Narnia Chronicles—these are a part of my reading history.  My daughter would say The Baby-Sitter Club Books and the Boxcar Children.  My son would say all the Animorph books, Harry Potter, Narnia, and of course all things L’Engle.  And I bet if you’re a reader you can name your series.  Perhaps you were hooked by the Beezus and Ramona books; or was it Encyclopedia Brown?  Dear America books?  Redwall?  Take a look at the series books listed at Goodreads and I bet that somewhere in that list, you’ll find a series that makes you nod your head and say, “I loved those books.”

That seems to be the power of series books:  we love them.  And because we love them, we get lost in them; we turn page after page; we wonder if Nancy will escape from the hidden attic even though the fact that the next 5 Nancy Drew books sit beside the bed is a clue she does.  Perhaps it’s the comfort of knowing the characters that makes them so enjoyable.  Perhaps it’s the cliffhangers at the end of each chapter that make us need to stay up for just one more chapter.

If you’re looking for information on the importance of series books in the development of lifetime readers, the go-to source is G. Robert Carlsen and Anne Sherrill:  Voices of Readers: How We Come to Love Books (Urbana, IL: National Council of Teachers of English, 1988).  Though this book is hard to find, it’s well worth your time to read.  In it, Carlson and Sherrill show the strong correlation between series books and lifetime readers.  He makes a similar case in Books and the Teenage Reader .

Other sources—some sited below—continue to make the point that no one becomes a lifetime reader without discovering a joy of reading, an intrinsic joy.  Almost always, one step in that joy is the reading of series books.

So whether your series was Harry Potter, the Dark is Rising, Frog and Toad, the Prydain Series, the Madeline books, The 39 Clues, the Ender books, the Hitchhiker’s Guide, The Borrowers, The Lost Years of Merlin, the Diary of a Wimpy Kid, the Wizard of Oz, Curious George, George and Martha, or…well, you fill in the blank, those books made a difference in your lifetime reading.  As summer comes, here’s hoping many other young readers will find delight in those books that make us want to stay up late and keep reading.

“A Fresh Look at Series Books”

Motivation: Going Beyond Testing to a Lifetime of Reading

The Mystery of Nancy Drew

Catherine Sheldrick Ross, “If They Read Nancy Drew, So What? Series Book Readers Talk Back,” Library and Information Science Research (LISR) vol. 17, 1995, pp. 201–36. This research won the American Library Association’s research award in 1995. A shortened version appeared in School Library Media Quarterly, Spring 1996, pp. 165–71.

1926 American Library Study of over 36,000 students sheds some light on series books and reading. Reported in: Only Connect, Sheila Egoff, G. T. Stubbs, and L. F. Ashley, eds. (New York: Oxford University Press, 1969), pp. 41–61.

“Can you hear us, Mr. Duncan?” Some Comments on Assessment

“What are you going to say about assessment in your new book?” the teacher asked Bob Probst and me.
“What do you mean?” we asked her.
“Well, are you going to come out against it? Hope you are. So much of education now is all about teaching to the test that assessment has really ruined teaching for me and ruined learning for a lot of kids. Just hoping that you two might take a stand against it,” she explained.

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Well . . . no. We won’t take a stand against assessments in general. We’ll take a stand against ridiculous assessments; against assessments that reduce the complex act of learning to a multiple-choice test; that measure the value of a teacher by the score a student makes on a state-mandated test; that limits what is learned in a classroom to what is checked on a test; that casts students as “pushables” or “slipables” or “bubble children” or “proficient” or “below-level.” We’ll take a stand against assessments that become the whole point of education. We’ll take a stand against linking a teacher’s pay to how well a student performs on a test. We’ll take a stand against the very high-level administrator who told us that “It’s all about the test.” No, it’s not. It’s all about the kids. Any assessment that causes us to forget that is one we’ll stand against.

That said, we do think that teachers have an obligation to know how students are progressing and to share that information in meaningful ways with students and their parents. We think that there are many ways of assessing progress—and some of those ways include teacher-made tests. We also recognize that scores on a high-stakes test give schools some information, but that information doesn’t tell a child or a parent much about the child’s growth as a learner, a contributor, a collaborator, a helper, an evaluator, a creator, a thinker. And, we believe that we don’t have to teach to the test to actually improve performance on the test. We think if we can get students engaged, if we can make learning relevant, if we teach students to consider issues deeply, critically, and thoughtfully, if we can teach students the strategies that help them become highly skilled readers, writers, and speakers, then they’ll do better on the tests. Any tests.

We’ve been saying it often, but perhaps not often enough: Better tests don’t improve learning. Better teaching does. Or perhaps we should say it louder.  Perhaps if we say it all together:  Better tests don’t improve learning. Better teaching does. Can you hear us, Mr. Duncan?

How Cancer Helped me Find my Superficial Self

This is the text of a speech I delivered a few months ago at a breast cancer awareness luncheon. I’m posting it today, April 13, which marks the two-year anniversary of my bilateral mastectomy. It is for all those women just beginning their journey with cancer. You are not alone.

There are three things about me that, if you know me well, you know are very true.

First, I am the eternal optimist, seeing in each person, including myself, the ability to do anything. I believe that our greatest failures are when we fail to try, when we fail to believe in ourselves. That belief let me have a one-on-one conversation (albeit short) with President Clinton when he and I ended up in the same restaurant in NYC. While everyone else watched the President and his buddy Kevin Spacey sit at the bar sipping beers while watching a basketball game, I walked up to a secret service agent and asked if the President was welcoming visitors. The agent said no, absolutely not, but Bill—we’re friends now so I can call him that—heard my question and he said, “Certainly young lady,” and waved me over and so I smiled at the agent who glared at me and made my way to the bar where for the next five minutes or so we talked about education (my favorite topic) and basketball (his favorite topic of the moment).

That belief in possibility lets me sit beside tenth graders who read at a third grade level and tell them with sincerity that if they will trust me and try even a little I am sure they can become better readers.

It lets me tell teachers in Texas and many other states that in spite of state and national legislation that is making their job all but impossible, I believe in their ability to help the students in their classrooms. I stand in schools that are surrounded by high fences with barbed wire across the top, where police arrive to tell a student that his father has shot his mother, where 90% of the students arrive for a free breakfast, their first meal since yesterday’s free lunch, and I tell teachers I believe in them and their ability to positively affect a child’s future because I do. Ever the optimist, I do.

Along with being the eternal optimist, comes my second trait. I am also a world-class worrier. If you say you’ll call me at 9 and by 9:30 I haven’t heard from you, I’m pretty sure I should start calling hospitals. You’re in no pain, (my worries cause me pain but never you), but you’re obviously now paralyzed because you can’t manage to hit the “call” button on your phone and additionally your trachea has probably been crushed because you can’t even whisper my name and phone number to the paramedics. I try to image life without you and can’t and as my heart races and palms grow sweaty I wonder who should be notified first. And then I realize that I don’t have the names and cell numbers of those you would want me to call to inform them of your trachea-crushing, spinal-cord-severing injury. When you do call, you are a bit confused when my first request is that you send me the phone numbers on your “favorites” list so that the next time your trachea is crushed and your body is paralyzed I can let others know. And because I’m the eternal optimist, I’m positive you’ll do that so when the accident happens, I’ll be prepared.

My kids gave up trying to convince me that a slightly late call doesn’t have to mean immediate disaster. It could mean the cell phone battery was dead; or it might mean a meeting ran late; or it might mean, heaven forbid, one simply forgot to call. I suppose each of those is true, but when you are a worrier, those rationale thoughts aren’t your first ones. And when the late caller finally calls and I realize all is well, I justify my worry with “But, you could have been hurt, lying in a ditch, unable to crawl to your phone, needing me to wonder which ditch you are in so I could come to your rescue; so aren’t you glad that someone in the world was worried about you?” My children simply sigh.

Trait number three. I am a procrastinator. Because of that, I love deadlines. I believe they exist for a reason, a single reason: to meet them. Not to beat them. Deadlines don’t race against you. They merely loom. Waiting. Patiently. Tauntingly. I won’t miss a deadline because then if you are also a worrier, you’ll think I’m in a ditch someplace and I wouldn’t want to put you through that. So if you tell me the article I’ve agreed to write is due by close of day, I’ll double check the date and I’ll ask you which time zone and then I’ll get it in, seconds before the deadline would pass.

So there you have me: I’m a procrastinating worrying optimist. My family and dear friends—many here today—are all saints for loving someone so strange. My doctors—also many here today—are super saints. You have earned that label because you were thrust into my life, my quirkiness, with little say. Once I arrived in your office, you found yourself treating a patient who simultaneously believes she has conquered this horrible disease called cancer while knowing that each new ache means it has spread, but then pushing the limits of how many times an appointment might be rescheduled. Surely the doctor I need is an analyst and not an oncologist.

And so, all three parts of me—optimist, worrier, and procrastinator—entered a new phase of life on March 12, 2010.

On that Friday, I was home working. I’m a writer, so working means sitting at a computer trying to get words on a page—or rather on a computer screen. A deadline was swiftly approaching and I was in a zone I love—words were flowing; ideas were crystallizing; and adrenalin was surging, meaning mornings started early—4:30 a.m.—and nights ended late—12:30 p.m. It’s that creative burst as the deadline brags, “You won’t make me” that I feed on and when it hits, no deadline has a chance. But this day, Worry raised its hand and begged to be heard.

“Go away,” I said to Worry. “Step aside as I do not have time for you today.” But Worry is jealous and kept tugging at me until I finally admitted to myself that something didn’t feel right. Something deep inside my right breast felt odd. Ached. I tried lowering my desk chair then raising it; I put a pillow behind my back; I changed bras. I stood and stretched. Pulled back my shoulders. Breathed deeply. Rolled my neck. But by noon, Worry had settled in for a stay and I decided I had breast cancer. Probably with only hours left of life. Rare type, most certainly never recorded in AMA journals.

Before I could play out what would happen next, Optimism arrived and nudged Worry out of the way. “Don’t you remember?” Optimism shouted. “Breast cancer doesn’t hurt. Fibroid cysts hurt. They come from caffeine and you’ve been mainlining caffeine for several weeks now. You’ve got fibroid cyst disease. Stop drinking caffeine.”

And with that new thought, I poured out my fourth cup of coffee for that day and vowed never to drink caffeine again. To rid my body of the toxic stuff, I stood at the kitchen sink and drank eight 8-ounce glasses of water, in a row, to flush the caffeine out of me. And then I peed for an hour.

But the deep ache didn’t go away and Worry whispered in my ear that something really was wrong and it wasn’t a fibroid cyst. It wasn’t caffeine.

And so, Worry beat out Optimism and Procrastination and I called the imaging center at St. Luke’s here in The Woodlands and asked how soon I could get a mammogram. Told a kind woman that something didn’t feel right. She said I should come on over. “Next week?” Procrastination asked. “Nope.” she said. “Come on over now.” I called Brad and told him something didn’t feel right but said he should stay put at his office downtown. Be he, knowing that my ability to procrastinate on everything meant I rarely went to the doctor, understood that if I had interrupted a writing day then I was concerned. I’m rarely concerned about me. I’m much too busy worrying about others. He began driving to The Woodlands from downtown while I was donning a gown at St. Luke’s.

I told the technician who was doing the mammogram that my right breast hurt. She asked if I had felt a lump. Not at all. Just deep inside, it hurt. She nodded and began taking a series of images. First this breast, then the other. When was your last mammogram, she asked. During the previous century my procrastinating self slowly admitted. But late in that century, my optimistic self added. She withheld judgment, finished taking images, told me to wait just a moment while she asked if the radiologist wanted more. Sure enough, a few minutes later she returned and said if I didn’t mind she’d take just a few more images. She looked at me and my eyes filled with tears.

Not too long after that, Dr. Ghobashy, an angel parading as a radiologist, appeared and told me that I didn’t need to go home wondering, that wondering can lead to worrying (indeed!), but that I did have a mass, very small, in my right breast and she couldn’t believe it hurt but she was nearly 100% certain it was cancer. And then she told me what I never expected: I had cancer in the other breast, too. “No.” I told her. “Just the right side; left side doesn’t hurt. No cancer there.” “Yes,” she said. “Look.” And so I looked at the computer screen at the image of the left breast and saw a cluster of white—she called the cluster calcifications and said that while calcifications often aren’t cancerous, she was sure mine were, and she said something else but I wasn’t listening because I knew that whatever she wanted to call it, it wasn’t good and wasn’t normal. “And here, in the right breast,” she said, pulling up that computer screen image, “you’ll see this black mass, right here, very small. Cancer. Invasive.” White mass in left breast. Black mass in right. Nothing grey anyplace; no ambiguity at all. No grey area. Cancer. Two kinds. One in each breast.

She reached out and touched me and I was back from wherever I had gone. Around me were women, nurses, angels, who stood close and for a moment we all shared the same air, shared the same fear, shared the same dread. We were one and for a moment we were invincible. “We should do a biopsy,” she said. I nodded. “When?” she asked. Procrastinator shouted at me, “Later. Never. When pigs fly,” but when I opened my mouth what came out was, “If we do it now, I can probably still be home in time for the dinner party at my house at 6:30.” She offered me a Xanax, quite sure I wasn’t coping. I took two.

Brad arrived; my dear friend Suzanne arrived. I called other friends Catherine and Linda. They convinced me the dinner party wasn’t important. I was surrounded by nurses who told me they were there with me, covered me with warm blankets, and while lying on a bed with a very long needle being pushed once and then twice and then a third time into one breast and then the other, I found myself remembering an incident with my son, Baker, when he was 4.

At that age, Baker loved to run through the house naked. Well, naked except for a crib sheet that he liked to wear as a magic cape. That yellow crib sheet turned him into Superman, made him invisible, let him become a roaring lion, and, when tired, served as immediate blankie for a nap any place. But he was naked and his older sister was quite tired of that especially when her friends came to play. “Mom, you have got to make him put on clothes. I do not care if he thinks he’s invisible; he is not.”
I thought that was a reasonable request, and so I called Baker to my bedroom and explained that if he wanted to run around naked in his room all the time, that was fine, but he was old enough to understand that when he was outside of his room then he really should keep his private parts covered. He listened intently and nodded seriously and announced, after some mulling of this idea, that he could do that. He headed toward his room, for clothes, I presumed. Five minutes later he zoomed through the den and Meredith shrieked, “Mom he’s still naked” and I heard Baker tell her he was not, that his private parts were covered and she yelled they were not and he yelled they were too and I arrived as quickly as possible to see my four-year-old wearing nothing but his birthday suit and his magic yellow cape standing up on a chair with his arms crossed against his stomach so that each hand could hold—an elbow.

Where are you clothes?” I asked. He told me he didn’t need any. He said I had told him to cover his private parts and he had done that. I told him he was holding his elbows. He said that was right; that he had thought about it and decided that of all his parts, his elbows were his most private parts. Meredith said Oh good grief and left me to figure this one out. Baker continued, “I don’t look at my elbows too often because they are hard to see and I figured that anything that is hard to see is probably your private part.” And with that, he jumped off the chair, and went running after our dog, yellow cape flying and elbows carefully covered.

And so, fifteen years later, I lay on that bed, robed in a hospital gown that bared my breasts for all in the room to see, with images of a white mass and a black mass in my mind’s eye, trying to remember if I had already set the table for the dinner party that I kept forgetting would not be happening, praying that my husband would arrive, that my friend Suzanne would get there immediately, and I looked down and realized I was clutching my elbows.

The next few weeks took me to a surgeon named Redwine (Redwine and Beers—of course) and to a plastic surgeon who was the first person who ever made me happy to have that middle-aged-I’ve-had-two-children-tummy-fat. “Ah, you’re a perfect candidate for a type of breast reconstruction that uses stomach fat,” he said, and I was suddenly vindicated for loving pasta and wine more than I loved broccoli and sit-ups. I fell in love with him for seeing me as perfect for something. He’s the same doctor who would not tell me that I could not go to Winnipeg, Canada, fourteen days after surgery but strongly suggested I might not be up to it. He was right. Fourteen days after surgery I could not walk from one end of the house to the other without stopping to rest. Fourteen days after surgery I had not yet looked at my naked self in a mirror. Fourteen days after surgery I sat in his office, clutching my elbows, and crying.
Do you hurt someplace, he asked. I shook my head no and gripped my elbows more tightly. Have you talked with other women with breast cancer, he asked. I cried more and again shook my head no as my nails dug gouges into my elbows. Can you tell me why all the tears, he said, and I knew then that my private parts had nothing to do with breasts or belly buttons or any other body part. Baker had it right all along. Private parts are the parts that we barely ever look at because they are so damned hard to see.

My most private part was deep underneath the procrastinating, worrying, optimist woman. My most private part was named Fear. I was afraid. Not afraid of the word cancer. That’s not the scary word. The scary word is spread. And underneath that was an even more basic fear: what if the person I loved, the person I the most wanted no longer found me attractive? What if I wasn’t pretty to him any more? At one level, I knew better than that. Love isn’t shallow; love isn’t skin-deep. The problem was, since the surgery, I was shallow; I was skin-deep.

As I sat in Dr. Schusterman’s office, I remembered the weeks right before surgery walking through the mall, looking at women in an all new light—I checked out breasts and watched when a perky pair caused men to stop and stare. Those breasts are her breasts, not reconstructed ones. I thought of the woman who asked me if cancer meant I had lost my breasts. Lost them? As in they were misplaced? No, I had not misplaced my breasts. They were taken from me. By a disease named Cancer. I thought of the day the phone rang and a nice man asked if I would make a donation to help support breast cancer. What? I said. “We’re collecting money to support breast cancer,” he repeated. No, I told him, I don’t support this disease at all. I hung up. All I wanted were real breasts. My breasts. For years, I realized, I had lied to my children telling them that what mattered most was what was on the inside. Not true. What mattered were nipples. And boobs. And mine now looked funny. Odd. I didn’t look normal. I couldn’t be loved. I wasn’t sure who I was any more.

And so I sat in Dr. Schusterman’s office, clutching my elbows, and whispered that I was afraid I wasn’t pretty. I was afraid I wasn’t loveable, wasn’t worth loving. I uncovered that most private part of me. My most private part was named fear and once I realized that as long as I held on to my fear, then I would struggle. But when I looked at fear and shared it, then what seemed hard became doable.

“I don’t feel pretty,” I said. And as I said it, I was embarrassed at this superficial revelation. He sat with me and listened. My fear at that moment wasn’t that some stray cancer cell was making a bee line for my liver. My fear was my breasts, still healing, didn’t look normal, didn’t look sexy. “You are healing great,” he said. “No I’m not, “I said. “I feel broken. I don’t feel pretty.” As I told him my fear, I noticed my elbows no longer throbbed because my hands no longer clenched them quite as tightly.

He nodded and then told me he thought he knew what would help. “Xanax?” I suggested. “No,” he said. I waited. What would this man, this lauded surgeon, who was rebuilding me one bit at a time, tell me? I nodded at him, urging him to go on. “Go buy a pretty bra,” he said. “Excuse me?” I said. “You want me to go buy a pretty bra? That’s it. That’s your advice?” “Yep,” he said. “Go to Top Drawer over by the Galleria and buy a pretty bra. You have pretty breasts, and you need to just feel pretty again. In fact, buy two and call me next week.”

I left and Brad drove me to the most expensive lingerie store I had ever visited. I stood looking at the white cotton no-nonsense 18-hour support bras and thought how much I liked the idea of a garment promising me support for 18 hours. But I pushed past that sensible promise and eventually stood staring at the skimpy black lacy bras. No tag promised support of any sort. A saleswoman approached me. Can I help you? she asked. I looked at her, let go of my elbows, and explained that I had just been sitting at my computer working when I felt a pain and instead of having a dinner party I had a mammogram and then a biopsy and then a bilateral mastectomy and then some pretty serious reshuffling of body tissue for reconstruction and now my plastic surgeon had recommended a pretty bra when I told him I was sad and I thought that was ridiculous because there was nothing about me that felt pretty and on top of everything I had missed my deadline and I never miss deadlines . . . I paused for air and she ushered me into a fitting room, probably to get me away from the sane people in the store, and while I stood there crying she undressed me, put the black lacy bra on me, and turned me to face the mirror.

She pulled back my shoulders, stood behind me, and whispered, “You look good. Very good. You have boobs a 25-year-old would covet.” I looked. Cleavage. Smooth skin peeked over the top of the lace. No scars showed. I turned sideways. No tummy. I smiled. “Maybe you have this bra in red, too?” I asked. “Maybe I do” she said smiling. “And maybe some panties, high cut in the leg?” She nodded, “I do.”

I left there an hour later explaining to Brad that the $350.00 lingerie bill was doctor’s orders.

In the many months since then, I’ve embraced my new superficial self. I linger over lipstick colors. I buy perfume on a whim. I’ve become a vegetarian and if any one asks why, I’m happy to report on the studies that link good health to vegetable protein. I carefully choose which mushrooms we eat. I grow tomatoes. I’ve taken up running, or at least I’ve bought the right Nike Barefoot shoes that proclaim I’m a runner.

I am learning, little by little, to find those private parts and, when needed, uncover them. I’ve learned that even the most private parts, at difficult times in our lives, have to be made at least somewhat public, accessible to those who need to know, not as intruders or spectators, but as allies and friends. Some matters just can’t be handled completely alone. None of us is an island. We need other people, and never more than when we would most like to retreat and withdraw. But there are, if we are lucky, people there, like these nurses and doctors and lingerie saleswomen, who can be welcomed into private places, private moments, and help us through them.

And so now with my doctors—plastic surgeon, oncologist, and now an orthopedic surgeon for a newly torn rotator cuff—I arrive wearing my sexiest bra and more likely than not I’m wearing something sleeveless, elbows bared, my own personal reminder that sometimes our private parts, those parts so hard to look at, need to be uncovered. I ask questions. I argue. I don’t say yes immediately. I do things in my own time. When I asked Dr. Nelson, oncologist extraordinaire, what questions I had failed to ask after one near two-hour visit, I believed him when he said he was sure there was no question I had not posed. And I am most grateful for the ways family and friends, doctors and nurses stand with me, with all us women who face each day with cancer somewhere in our minds.

When Dr. Nelson told me he wanted me to start a drug, an aromatize inhibitor, to squash any remaining estrogen in my body, but that drug might cause joint problems, and perhaps hot flashes, and maybe mood swings, and perhaps a loss of bone density so I’d need a bone density test and if that came back showing problems, I’d need to start another drug that would fight bone loss. “Haven’t I heard that that drug causes fractures?” I asked. “Well yes,” he conceded, “it does that and it has been known to severely weaken jaw bones so we’ll have to be careful with any dental work.” Of all that he said to me what I remember the most is his comment that “We’ll have to be careful.” He was in this with me. Me and my oncologist. Facing cancer together.

Surely a partner in this quest would understand my request: “Ok, but this sounds dreadful and I feel anxious, so I’d like a prescription for some Xanax. OK? I just want the constant gnaw of anxiousness gone.” He shook his head no. “Why not?” I asked. “It might be habit forming,” he responded.

“Are you kidding me,” I said. “My breasts have been removed, my cancer might return, my estrogen is gone, my bones might disintegrate and you think I’m worried that I might come to rely on this magic pill that takes the edge of anxiousness? Are you kidding me?” “Nope,” he said. “You will be fine without it.” Will not, my worrying self thought. He read my mind. “You will be fine,” he repeated. My hands were by my side; my private parts were showing. I looked at Dr. Nelson who was willing to go on this journey with me, quirky me, some days optimistic, other days worried. Together we were facing my fears. He had my back.

I dressed, putting on my sexy, lacy, black bra and I walked out of there, into the world, elbows showing.

Thank you, each of you, for the journey you take with all of us who live with cancer. You give us the courage to face our private parts.

Bio information:

Kylene Beers is an award-winning educator and the best-selling author of When Kids Can’t Read/What Teachers Can Do and Elements of Literature, the literature textbook read by the majority of middle school and high school students across the US. She began her teaching career in 1979 in the Alief School District. Since then, she has become an internationally-known and respected authority in literacy education. Kylene works tirelessly to help parents, teachers, and national policy makers understand how to best help struggling readers. In 2008-2009, she served as President of the National Council of Teachers of English and in 2011 she received the Conference on English Leadership Outstanding Leader Award. She was the editor of a national literacy journal, taught in the College of Education at the University of Houston, held a reading research position in the Comer School Development Program at Yale University School of Medicine, and currently serves as an as-needed advisor on secondary reading to the Reading and Writing Project at Teachers College, Columbia University.

In late March 2010, Kylene was diagnosed with two different types of cancer, one in each breast. She underwent a bilateral mastectomy on April 13, 2010. Since then, she’s become a vegetarian, found a Chinese massage therapist, finished writing another book, given 54 keynote speeches, called her college-age children one zillion times, convinced her husband that Sonoma wines are more healing when sipped in Sonoma, taken up marathon running (well, she’s read Born to Run and bought the right shoes), and discovered the joys of lingering over new lipstick colors, growing tomatoes, and smelling all the roses.

You can follow Kylene on Twitter at http://twitter.com/#!/KyleneBeers where she mostly comments on things educational or on Facebook where she expands her remarks to include bragging about her children or here, on her blog, which she recently found and is pleased to have dusted it off and is using it again!

A Kid is Not an “H”

I was in a cab in Baltimore talking with the driver. He eventually asked me what I did and I told him I spend most of my time working with teachers of middle and high school students who read below grade level. He asked if I’d give him some advice. He said he has 12 grandchildren, and number 9, “our third grader who is the nicest kid you will ever meet,” is having trouble with reading. “He’s a H. Do you know what that is? His teacher keeps telling his mom that he’s a H. We don’t know what that is.”

While I didn’t give him a crash course in the leveling systems for books that schools use, I did explain that a book might be labeled an H, but his grandchild is not an H. He’s not a J or M or a P and he, his wife, the child’s parents and most importantly that little eight-year-old boy should stop thinking of himself as an “H.” We talked about things they could do at home to grow his confidence as a reader and improve his enjoyment of reading while improving his fluency and comprehension. I have a feeling this grandpa is doing all of them, right now. And as good as I feel about this family’s concern about this child, I feel as bad that somewhere between the teacher learning about leveling books and talking with children and then the parents of those children, the book lost the label and the child gained it. Let’s please be careful and not confuse the designation we might give to a book with a label we place on a child. A child is not an H.

The Springtime of this Journey

I’m sitting in my favorite chair that looks out to our backyard—one that is filled with 75’ cypress and pines and backs up to a 300-acre nature preserve—and am still stunned at all that has happened in the past six weeks.  The photos show you what it is I see as I look out a window.  My azaleas have budded, bloomed, faded, and now are back to being the green bushes they will be for most of the year.  My pansies have finished blooming and lantana flowers have emerged and now are filling spaces around the pool with vibrant oranges and yellows.  Old life; new life. I look around and see how quickly this yard has changed in the past six weeks and cannot help but think about how these visible changes mirror the changes in me.

Six weeks ago I had barely absorbed the word cancer before heading off for surgery exactly four weeks later that left me cancer free.  I hear women say they are ten-year or fifteen-year or three-year cancer survivors and I wonder if I can say I am a one-month cancer survivor?  Hardly seems worth mentioning.  And yet…and yet that one month changed me and I am surviving—something.  It was only last week that was I finally brave enough to look into a mirror.  I’m scarred and changed and though my plastic surgeon assures me I will like the way I will eventually look, “eventually” is not a word I like right now, and I grimace each time I see what I have become.  My girlfriend Suzanne reminds me that I now have the flat tummy of an 18-year-old and once all reconstruction is finished will have boobs that can once again enjoy Victoria’s Secrets.  The problem is, I liked myself the way I was.  I was probably one of a handful of women who looked in the mirror and liked herself.  It was the body of a 52-year-old, and so it had its lumps and bumps, but it was mine.  Mine.  It had borne my children, nursed them, enjoyed too many evenings with friends that centered on good wine, hot bread, steamed crab legs, melted butter, and gooey brownies with ice cream (Blue Bell, says the Texan) for dessert.  It wasn’t some model’s perfect body, but it was mine.  And now, a part of it is gone and another part has shifted to another place and there are tugs that don’t feel right and scars that haven’t yet faded and there is still a drain attached inside me and as I look in the mirror, sometimes a glance and other times a stare, I know there is something I am surviving though I cannot yet give it words.

Mostly days are good.  Mostly I find something that is worth if not a full-out laugh at least a smile.  The other day, the plastic surgeon asked me which part of “patience” is hard for me.  “The patient part,” I admitted.  And we all laughed.  A good laugh.  One that made the incision across my abdomen hurt.  He nodded and said he liked that I was honest.  And then, he invited Brad out for a scotch, said he was quite sure Brad had earned it.  Brad said he would go—anytime.  I suggested it wasn’t quite right for my surgeon to like my husband more than he liked me, and neither guy seemed to mind my jealousy at their friendship.  But then he redeemed himself when he held my hand and said, “I’m called a reconstructive surgeon because something got hurt.  Stop thinking you aren’t supposed to grieve what you lost.  I rebuild because something got taken, destroyed.  You lost a part of yourself.  It’s ok to grieve that loss.”  I suppose others have said the same thing or something similar, but there was something gentle and caring and so very understanding that finally let loose tears that had needed to fall.  An hour later, sitting calmly with one of his nurses who has come to mean much to me, life seemed better.  I seemed better.  Brad was still there. None of this has scared him away.  And my surgeon still promises that given some time, I’ll look in a mirror and like what I see.  And both remind me that I am, under all the bruises and scars, drains and bandages, cancer free.  Both remind me that all that I knew before this happened, I still know.  All that I was, I still am. And all that I might wish to become, I still can become.  Cancer free. And with a Victoria’s Secret bra.

And so, I sit here in my favorite chair and look out to a spring that in some ways is already giving way to summer, and I think not only of myself but of all the people who have helped me through this season.  And I think of students who sit in our classrooms with their own scars and bruises, their own visions of themselves that the world sometimes says is damaged and I think of the many, many teachers who reach out and tell them that the world is wrong, that they are ok, and that all will be better.  Plastic surgeons reconstruct, take what has been hurt and make it better.  So do teachers.   Every day.  Do you know what a gift that is to hand to someone, to promise them that with a little patience, hard work, and skill, tomorrow will be better?  It’s a great gift, a great and healing gift.  I look forward to tomorrow.  I hope you do as well.

A PS:  There’s an obvious lag between the last post on this site and this one.  I shifted for a while to CarePages.com and posted updates there.  Though I’m no longer posting updates on that site, there are some funny exchanges (see especially the ones from Harvey “Smokey” Daniels and Bob Probst) that English teachers might enjoy.

An Unexpected Gift on this Unexpected Journey, update 3-29-2010

We are given these unexpected gifts in our lives.  They arrive suddenly, with little or no warning, and warm us for a moment, or if we are lucky, for a lifetime.

There is no way I am ready to name, perhaps will ever be ready to name, cancer a gift.  Some are more generous-hearted than I and will find their journeys with cancer as some sort of gift.  I am not that person.  This doesn’t feel like a gift, nor does it feel like a burden.  It is simply what is next.  Someone pointed out that this was proof indeed that life is not fair.  “This what?” I asked.  “That you ended up with cancer,” he replied, his eyes brimming with tears.  “It’s just not fair.”

I so appreciate his care and concern, but me having cancer has nothing to do with life not being fair.  Life isn’t fair, but that is proven every day in ways far more important than this diagnosis. I am reminded of life’s inequalities each time I walk into certain schools in New Haven, Houston, Los Angeles, Chicago, New York City, Miami, Nashville, Dallas, Fairfax, Murfreesboro, Louisville, Detroit, Boston, or–well, the list goes on and on.  I am reminded of life’s discriminations each time I drive through the neighborhoods of those schools.  Too many of the schools I visit are filled with children and teens whose lives are dominated by hunger and bounded by fears.  I recall a ten-year-old boy who walks up four flights of stairs to a three-room apartment that has no air-conditioning save an oscillating fan, and no heat except the toaster oven that his mom leaves on in the winter.  He shares a mattress with two brothers and one sister and he knows that the night will be good if his mom is humming when she comes up the stairs because it means she will have earned enough tips at her job to bring home something she thinks will be special for dinner.  Life is not fair.  Why does this kid go hungry and that kid not?  Why does this little boy attend a school where, no matter what the teachers want to do with the students, the daily reminder from the principal is to make sure they can pass THE TEST and so their days are spent drilling with test-prep materials while students on the other side of town (literally) focus on growing vegetables in their school garden, reading novels of their own choice, and spend afternoons Skyping with kids in Alaska to talk about how oil-drilling in that state could affect their environment?  These are inequalities that matter.

There is no fairness that from the moment I thought something was wrong until the moment I was meeting with one of the best surgeons in town, less than a week had passed, while other women must wait weeks as they move from concern to test to diagnosis to plan. During my one week of waiting and wondering, I talked with a woman, a black woman, a dental aide, who, now divorced, has no insurance and has felt a lump in her breast but the Planned Parenthood clinic where she once could have gone to get a mammogram has closed and the closest one is several bus rides away and she can’t get there after her work before it closes.  She’s hoping to get into a free clinic that is closer to her home on Saturday, but for now, she tells me, she just worries and then she hugs me and wishes me well.  She hugs me and wishes me well.

And there it was: the unexpected gift.  That gift of a wish from someone who knows firsthand, in a way far different from the way that I know it, that life is not fair.  She asks if I know the health care bill passed the night before.  I tell her I do.  I tell her that my son, a freshman in college, called at midnight, asking me, “Mom, did you watch it? Did you see it? It passed!”  She nodded and said, “It’s going to help me.  I’ve been following it.  It’s going to be helping me.”  She smiled and concluded, “It won’t solve everything and I suppose it still has problems but it’s going to help me and that makes me breathe easier, for my kids, you know?  They need their mom to be able to keep working.  To pay the rent, you know?”

This past week, the House passed the health care bill.  Some of you reading this will be disappointed that it passed.  For some of you that will be because you have actually read the bill or at least made your way through detailed articles in news magazines or newspapers and can point to very specific provisions of the bill that you wish had not been included, or you will be able to point to gaps where you can say, with specificity, what else it is that the bill should have included.  Others of you reading this will be happy that it passed simply because it means that Democrats won and Republicans lost; some will be dismayed because it means the opposite.  But I wonder, just wonder, how many of us reading this and passing judgment on the passage of the bill do so in the context of being uninsured, being dependent on free clinics, and knowing that if we hear we have cancer we understand that lack of immediate care will make a difference in the length and the quality of our lives.

I’m carrying around her hug, a hug given without any commentary on the unfairness of life, without any strings attached.  I see teachers hand out this type of gift to students each day—the words of encouragement on a paper hesitantly turned in, the star next to the one answer on a test that showed real understanding, the nod of support as that shy student finally decides to speak up, the note home to the parent that only mentions reasons why that student is a pleasure to have in class, the willingness to say to the student who pleads for another day to get in the report to remember that sometimes life is not fair and we have the ability to level the playing field a tiny bit by saying one more day is just fine.  No new set of standards will be what makes a day feel just a bit more fair to these children; no new races to the top and certainly not one more mandate or test.  Teachers will make the difference.  And, of course, a hug won’t be enough.  We’ve got to make sure we know enough about each student’s progress to understand how to help each move forward.  We’ve got to make sure we understand enough about our own content to know how to teach and re-teach and, if necessary for that particular student re-teach yet again.  But we can’t ever forget that alongside the teaching we do, the unconditional and at times unexpected support and encouragement we offer to children who know firsthand that life is not fair is a gift that can warm a heart for a moment, or, if we’re lucky, a lifetime.

3-23-2010

Well, these surgeons!  They actually like to be the ones to set the schedule for the surgery.  They told me the date.  I said, “Hmm.”  I explained there were workshops to be given.  I explained deadlines to be met.  I talked about speeches.  I even showed them my calendar.  Neither cared (though both are certainly caring men).  There was a bit of humoring me as people explained why, “No, this can’t be sooner” and “NO it can’t be later” so that with hardly any negotiating on my part (um, none), their date for surgery soon seemed acceptable:  Tuesday, April 13.

Lots of work between now and then on new book due out in late October (and thank you to Bob Probst, co-author supreme for showing tremendous support and flexibility of his time during this time).  And do we all remember our chant?  Clean sentinel nodes. I guess adding in “And steady hands for surgeons” isn’t a bad idea either!

Bob and I are in New Jersey today with 200+ of the smartest, smartest teachers around.  I think we were both taken by their concern not only about how to best help students, but how to work in a proactive way so that policy makers might better understand that testing doesn’t improve learning; better teaching does.  These teachers are facing huge financial cutbacks in their districts that will affect their own financial lives, and yet, they were here, at our workshop to learn more.  Cutting professional development opportunities is one powerful way to make sure that learning for all students does not improve.  These teachers showed me today what dedication to the task is all about—and sometimes it’s about doing things the hard way, (and for some today that meant paying for this workshop out of their own pockets) and finding the time you didn’t think you had to get done what needs to be done.

Oh, right!  Finding the time you didn’t think you had to get done what needs to be done, and doing things even when they will be hard.  Perhaps a lesson I’ll remember as I think about April 13.

Notes on An Unexpected Journey

3-14-10

Dear Friends,

I wanted to let you—all a part of my wonderful extended family—in on some less than good news.  On Friday, I got the unsettling preliminary news of breast cancer.

On Friday afternoon, knowing something didn’t feel just right, I went into to the women’s diagnostic imaging center at St. Luke’s Hospital for what I had hoped would be a quick, routine mammogram.  But one thing led to another and soon I was with a wonderful radiologist who spent the next several hours with me as we moved from mammograms to ultrasounds to biopsies to hearing not so good news.  By that time, I was surrounded by the radiologist, four great nurses, Brad, and my dearest friend Suzanne and we were beginning to absorb the difficult word cancer.  The good news at this moment is these initial tests show no lymph glands to be involved, though there are problems to be dealt with in each breast.  We’ll move to an MRI on Monday and more detailed reports on Tuesday and I hope to be meeting with an oncologist and surgeon late in the week—but it might be that I actually have to let other people’s schedules dictate some of these next steps!

This is, of course, what no person ever wants to hear.  But, once heard, it’s amazing how quickly you discover that the faith of friends holds you up when your knees buckle and that friendship is indeed a security blanket that is warm and comforting. I’m doing fine (though I did give myself a pass on an important Monday meeting!) and expect that, surrounded by great friends and family with all their positive thoughts, I will get through all before us just fine.

Brad, Meredith, and Baker continue to be the amazingly strong people they are.

We’ll let you know what happens next.  Though I will try to handle a lot of correspondence, Bob Probst will become my carrier pigeon extraordinaire for much of what happens over next few days.

My very, very best thoughts to each of you–

Kylene

3-15-10

MRI and then conversation with the radiologist confirmed again all that was seen on Friday.  Many good friends stepping forward to help with a myriad of details.  Staff at St. Luke’s Hospital The Woodlands is made up of angels.  And many more friends from distances sending powerful messages of support.

I can’t help but breathe easier.

3-16-10

And because we must laugh…two of the great doctors who have been recommended to me are Dr. Boozer and Dr. Redwine.  Surely, SURELY, one of those guys would work well with Beers!

Pathology report today confirmed what the radiologist had said we’d see—cancer on one side that is still encapsulated (great news) and cancer on the other that is invasive but lymph glands not showing any swelling (so very good news) and that nodule is less than 1 centimeter.

POSITIVE THOUGHTS all!   PET CT scan (I think I’m spelling that right) is on Thursday at 10:45.  That’s to make sure we don’t see any malignant cells any place else.  I bet we all can figure out the prayer for Thursday!

Many thanks, all.  Many, many thanks!  Special thanks to Linda Greene being with me as path report read.

3-17-10

Great day today (loved my quick chat with Suzy and many thanks to Francene for continuing our phone tag game!) and wanted all to know the plan for tomorrow because it feels big to me.

10:30:  Meet with Mark Schusterman, the reconstructive plastic surgeon
1:15:  PET scan (where the prayer is NO signs of anything that has spread).  NADA. NOTHING.
3:30:  Meet with Bill Redwine, the breast surgeon

So, deep breath for tomorrow about the PET scan.  Keep your prayers focused that what’s in the boob stays in the boob (with apologies to Vegas ads!).  Let your prayer groups know….

Thanks to all for the love and support.  Can feel it here, in my study, looking out at trees a’ budding…LIFE everywhere!

Kylene

3-18-2010

Hi all,

We’re home after the three-stop tour that included meeting some great people and learning some more information, but not yet having a surgery date.

I really liked the plastic surgeon, Mark Schusterman.  In the small world department (for Trinity Houston friends), his uncle-in-law is Norman Kittrell and he knows Murray Powell and we Trinity Episcopalians won’t hold it against him that he goes to St. John’s.  He’s an amazing man who pioneered the reconstructive process I’ll use, was the Chief of Plastic Surgery at M.D. Anderson, now has his own practice, is a clinical professor at Baylor, and does surgery at St. Luke’s Hospital.  He started his visit with us at 10:30 and two hours later was still talking with us.  When we began to look at schedules, his first available time for surgery is April 5 and I mentioned that if he could move this up some, I’d like to get to Winnipeg, Canada, on April 10.  He looked at Brad and asked if Brad was going to tell me or if he was.  Brad laughed and said 31 years of marriage had worked because he had rarely tried to tell me something I could not do.  Mark, not having this history with me, had no trouble telling me that thinking I’d be on a plane 5 days after a bilateral mastectomy with reconstructive surgery just wasn’t going to happen.  I looked at him and he looked at me and I looked back and after a moment, he said, well, he didn’t expect it would happen.

Then we hit the PET Imaging center where they put some sort of radioactive something in me and then put me in the MRI machine to see if I glow anyplace else.  We still don’t know the results of that.  So, folks, I still appreciate prayers that are about no spread of this disease to any other part of my body.  I felt the peace all were offering because, though I could have sworn I was nervous, I fell so deeply asleep for a part of the test they had to shake me to wake me up.  I’m counting on you folks who obviously did a good job praying I be peaceful with all this will also use that same prayer power to make sure what’s in the boobs stays in the boobs.

From there we went to see the breast surgeon, William Redwine.  He’s not only a brilliant breast surgeon but is Chief of Staff for St. Luke’s Hospital.  I thought Brad and I might be in for a bit of marital setback when he walked into the examination room and immediately looked at Brad and said, “I know you.”  Brad shook his head no.  Bill was adamant that he did, said he had just met Brad.  I looked at Brad and asked him which other woman he had been with for breast surgery.  Brad denied again and then Redwine said he remembered it was two weeks ago at Camp Allen where the St. Luke’s Hospital had its retreat.  Brad’s on the Board for St. Luke’s Hospital (The Woodlands) and that’s where they met—actually sat beside each other at lunch.  OK.  That sounded acceptable.

Redwine was thorough, methodical, and he (just as two other doctors have been) was dubious when I explained that a pain in my breast on Thursday night was what sent me in for a mammogram on Friday afternoon.  As he explained, cancer doesn’t hurt.   I know that.  Most women I know understand that when a woman has a pain in her breast it means some sort of fibrous cyst and we should cut back on caffeine.   But I also knew that this pain felt odd and I—who never go to the doctor—knew I had to get in that day, right then.  He doesn’t doubt I felt a pain, but just wanted me to understand that the cancer hadn’t caused a pain.  That’s fine.  I figure I’ve been a big enough pain to God over the years that the Almighty didn’t mind getting my attention with what needed to be done with a little pain back at me.  Seems fair.  Certainly worked.

Redwine, too, was less worried about my schedule than I was!  He didn’t like April 5 as a date because of some pre-surgery stuff I have to do the day before and the day before is a Sunday—Easter Sunday.  He and Schusterman, who know each other well, will talk tomorrow and figure out the date they want. I kind of like the idea of having this done Easter week.  Rebirth.  New life. Even non-English majors get the symbolism of that one!

It will be long surgery—about 6 hours—and of course we will let all know when it is the moment we know.  I don’t want Bradley there alone, so Houston folks, pack some lunches and I hope some of you will be there with him.  Until then, please keep Meredith and Baker in your thoughts and prayers.  They need to know I’m in good hands so they can keep their thoughts on their studies where they need to be.  Keep Brad in your prayers that he can continue to put up with my inability to remember much beyond about 10 minutes.  And keep me in your prayers, that the cancer we’ve found early has not spread and that surgery solves this problem.

My good friend Keith Younker sent me an email I keep with me that says, “We are standing on holy ground, and we know that there are angels all around….” You are all my angels and I feel each of you all around.

Love to all and many thanks–

3-19-10

Results from the PET scan were great and then greater.  Great news was no sign of spread of cancer to any other organs.  Even greater was some tumor activity marker that came back with an extremely low count.  You’ll forgive my ability to absorb only a certain amount of new vocabulary at a time.  (By the way:  This experience is reinforcing all my thoughts about how we should teach vocabulary in the classroom.  I’ve been saying for years to set aside those 20-words-per-week vocabulary lists.  Now I’ll shout it from the mountaintops:  teach only a few words each week, critical words. When learning new words, no matter how important they are, the brain can only absorb so much at a time!)  The marker came back at .3, which was great as people are often up at 8 or 9.  This was great news.

So, now, folks, the prayer is simple:  Clean Sentinel Nodes.  Chant it.  Prayer it.  Hum it.  Think it.

We’re taking Meredith, coming in from Tulane, and three of her friends to dinner tonight where several of our Woodlands friends will join us.  I’m hoping you, too, each have those you love and adore around you tonight.